Interviews With

Advocates

Advocates

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

Conversations Talking with Jennifer Weaver, today.  Jennifer works with Cholangiocarcinoma Foundation (CCF).  Before talking about the great work you're doing with CCF.  Let's first talk about cholangiocarcinoma known as CCA or bile duct cancer (BDC).  Tell Conversations, what is CCA?   Jennifer Weaver, Cholangiocarcinoma Foundation Cholangiocarcinoma pronounced (koh-LAN-jee-oh-KAR-sih-NOH-muh) is a…
Douglas Lowell
September 1, 2022
Advocates

We hope our doors close one day due to finding a cure

Douglas Lowell, Find A Cure Panel I'm excited to be speaking today with Roberta Smith, president of Alagille Syndrome Alliance (ALGSA). Roberta, welcome.   Roberta Smith, president of Alagille Syndrome Alliance (ALGSA) Thank you so much. I'm always eager to spread awareness about Alagille Syndrome and this is a great…
Douglas Lowell
May 25, 2021
Advocates

I decided to be the change that I wanted to see

Conversations: Mapillar, thanks for speaking to CONVERSATIONS today. Now, you're both a caregiver and advocate for sickle cell disease (SCD)?   Mapillar Dahn / MTS Sickle Cell Foundation: You're so very welcome. It's my pleasure. I am the mother of three beautiful daughters who all suffer from sickle cell disease.…
Douglas Lowell
May 17, 2019