FACP Magazine

Advocates

The father has asked if they must return to Pakistan if my husband and I would adopt their child with HoFH so that he can live

Douglas Lowell, Find A Cure Panel. Today, I welcome Cynthia Villwock, HoFH caregiver and advocate. Cynthia Villwock, HoFH caregiver and advocate Thank you for asking me Douglas Lowell, Find A Cure Panel. Cynthia, I want to start by defining Homozygous Familial Hypercholesterolemia (HoFH) hereafter HoFH. What is this…

Douglas LowellAugust 2, 2023

Practioners

I grew a heart for my patients with dementia who I felt were underserved and misunderstood

Douglas Lowell, Find a Cure Panel Welcoming Adria Thompson today to Conversations Adria, tell us how you became an advocate for Alzheimer’s? Adria Thompson, Be Light Care Consulting I have been a speech language pathologist for 9 years working in long term care and as I was providing…

Douglas LowellAugust 1, 2023

Advocates

I would want to see anyone with a serious mental illness live independently if they truly can, safely and successfully

Douglas Lowell, Find A Cure Panel I'm here with Kartar Diamond, a schizophrenia advocate. Thanks for joining Conversations, Kartar. Kartar Diamond, schizophrenia advocate and author Thank you. Douglas Lowell, Find A Cure Panel I want to start by defining Schizophrenia. Everyone has heard of it but I think…

Douglas LowellJuly 28, 2023

Advocates

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

Conversations Talking with Jennifer Weaver, today. Jennifer works with Cholangiocarcinoma Foundation (CCF). Before talking about the great work you're doing with CCF. Let's first talk about cholangiocarcinoma known as CCA or bile duct cancer (BDC). Tell Conversations, what is CCA? Jennifer Weaver, Cholangiocarcinoma Foundation Cholangiocarcinoma pronounced (koh-LAN-jee-oh-KAR-sih-NOH-muh) is a…

Douglas LowellSeptember 1, 2022

Patients

I need these scientists to work harder. I have to work hard to fight this disease.

CONVERSATIONS Sue, hi. Thanks so much for joining Conversations today. So grateful for your time. SUE FUTERAL Thank you. My pleasure. CONVERSATIONS Sue, let me first ask you about ALL. Most people know that leukemia is a blood cancer but may not realize there are 30 to 40…

Douglas LowellAugust 28, 2022

Advocates

We hope our doors close one day due to finding a cure

Douglas Lowell, Find A Cure Panel I'm excited to be speaking today with Roberta Smith, president of Alagille Syndrome Alliance (ALGSA). Roberta, welcome. Roberta Smith, president of Alagille Syndrome Alliance (ALGSA) Thank you so much. I'm always eager to spread awareness about Alagille Syndrome and this is a great…

Douglas LowellMay 25, 2021

Advocates Patients

It’s like my sharing became a portal and opening for other people to share their stories

Douglas Lowell – Find a Cure Panel - Conversations I am here with eczema advocate, Ashley Lora. Ashley, thanks for joining Conversations today. Ashley Lora Thanks for having me, Doug! Douglas Lowell – Find a Cure Panel - Conversations Many people know of eczema. It's very common. But…

Douglas LowellFebruary 12, 2021

Patients

I am using the essential oils in combination with the medicine

Conversations: Elisa, thanks for talking to Conversations today. You have a very interesting and diverse story of conditions and diseases. Can you lead us through some summary of what you've been battling over the years? Elisa Denaburg: Yes, the main issue was my thyroid. I had a misdiagnosis for…

Douglas LowellJuly 30, 2020

Researchers

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Conversations: I am here today to talk to Doug Lowell, the president of Find A Cure Panel about Find A Cure Panel. So, yes, I’m interviewing myself! I’m doing this because so many people ask me about Find A Cure Panel and I wanted to create some reference points for…

Douglas LowellJuly 11, 2020

Patients

Amyloidosis has been called “the great imposter” because many doctors mistake its symptoms for other diseases

Conversations: Eric, thanks for talking to Conversations today. Let me ask you: What is amyloidosis? What are the different types of it? And which one do you have? Eric Eckerstrom: Amyloid is a starchy sticky substance made by misfolded proteins of various types . The types are called out…

Douglas LowellMay 25, 2020

Advocates

My goal for UCAN is to become the Susan G Komen for uterine cancer

Conversations: Shakeya, thanks for talking to Conversations today. Before we talk about the exciting things UCAN is doing. Let me first ask you, what is endometrial cancer/ uterine cancer? Shakeya Allen – Uterine Cancer Awareness Network Endometrial cancer is cancer contained inside the body of the uterus. Most people…

Douglas LowellMay 19, 2020

Patients

I was put on ABVD . . . I called it the “smart bomb” for killing Hodgkin’s

Conversations I'm here with my old friend, Greg Flanagan Flanagan. Hoss, thanks for talking to Conversations today. You recently battled Hodgkins Lymphoma . . . there are 40 to 50 leukemias and lymphomas. What is Hodgkins Lymphoma (HL) and how does it differ from Non Hodgkins Lymphoma (NHL)? Greg…

Douglas LowellMay 15, 2020

The father has asked if they must return to Pakistan if my husband and I would adopt their child with HoFH so that he can live

I grew a heart for my patients with dementia who I felt were underserved and misunderstood

I would want to see anyone with a serious mental illness live independently if they truly can, safely and successfully

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

Latest Interviews

The father has asked if they must return to Pakistan if my husband and I would adopt their child with HoFH so that he can live

I grew a heart for my patients with dementia who I felt were underserved and misunderstood

I would want to see anyone with a serious mental illness live independently if they truly can, safely and successfully

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Cancer does not have the final say, God does!!!

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

I am using the essential oils in combination with the medicine

Listening to the Bones

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

Angel Nephrologist put together a family history and suggested Alport syndrome

I need these scientists to work harder. I have to work hard to fight this disease.

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

I need these scientists to work harder. I have to work hard to fight this disease.

We hope our doors close one day due to finding a cure

It’s like my sharing became a portal and opening for other people to share their stories

I am using the essential oils in combination with the medicine

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Amyloidosis has been called “the great imposter” because many doctors mistake its symptoms for other diseases

My goal for UCAN is to become the Susan G Komen for uterine cancer

I was put on ABVD . . . I called it the “smart bomb” for killing Hodgkin’s

Latest Interviews

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