Patients

Cancer does not have the final say, God does!!!

Conversations: Robin, thanks so much for speaking to Conversations today. I want to start by asking you . . . what is bile duct cancer also called cholangiocarcinoma . . . ? As many people, don't know much about this type of cancer . . . Robin Garrett: Bile duct…
Advocates

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

Conversations: Melissa, thanks so much for talking to CONVERSATIONS today.  I know you have such a powerful story. In fact, one of the reasons I started CONVERSATIONS was because of people like you who I’ve met over the years.  I want to start by asking you what is Huntington’s Disease?…
Patients

My doctor looked across the room at me and said, “You have quite a mess here . . .”

Conversations: Lynn, thanks so much for talking to CONVERSATIONS today.  Let's talk GIST.  What is GIST?  As most people haven't heard of it and if they have, they probably know little about it. Lynn Whelan: GIST is a very rare cancer....a type of sarcoma called a Gastrointestinal stromal tumor. It…
Patients

I definitely fell into a rabbit hole of reading various journals and articles

Conversations: Linda, thanks so much for speaking with you CONVERSATIONS today.  Tell us about CTTP. What does that stand for?  What type of disease it? Linda Bonilla: Thank you for having me. CTTP stands for Congenital Thrombotic Thrombocytopenic Purpura. It's a form of anemia in which the body does not…
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Latest Interviews

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Patients

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today.  Tell us about Glanzmann Thrombasthenia (GT))?  What type of disease is this?  How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in normal, but the platelets don't function properly,…
Douglas Lowell
June 26, 2019
Practioners

Many patients are often prematurely discharged from inpatient units and inevitably destabilize or are released from jails without proper treatment.

Conversations: Lynn, hi.  Thanks for speaking with CONVERSATIONS today.  Tell us about your practice? What you specialize in? What your niche is? Lynn Nanos: Hi, Conversations! Thank you for inviting me to interview with you! I’m a mobile emergency psychiatric social worker in Massachusetts and I've been doing this for…
Douglas Lowell
June 14, 2019
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