FACP Magazine

Patients

I am using the essential oils in combination with the medicine

Conversations: Elisa, thanks for talking to Conversations today. You have a very interesting and diverse story of conditions and diseases. Can you lead us through some summary of what you've been battling over the years? Elisa Denaburg: Yes, the main issue was my thyroid. I had a misdiagnosis for…

Douglas LowellJuly 30, 2020

Researchers

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Conversations: I am here today to talk to Doug Lowell, the president of Find A Cure Panel about Find A Cure Panel. So, yes, I’m interviewing myself! I’m doing this because so many people ask me about Find A Cure Panel and I wanted to create some reference points for…

Douglas LowellJuly 11, 2020

Patients

Amyloidosis has been called “the great imposter” because many doctors mistake its symptoms for other diseases

Conversations: Eric, thanks for talking to Conversations today. Let me ask you: What is amyloidosis? What are the different types of it? And which one do you have? Eric Eckerstrom: Amyloid is a starchy sticky substance made by misfolded proteins of various types . The types are called out…

Douglas LowellMay 25, 2020

Advocates

My goal for UCAN is to become the Susan G Komen for uterine cancer

Conversations: Shakeya, thanks for talking to Conversations today. Before we talk about the exciting things UCAN is doing. Let me first ask you, what is endometrial cancer/ uterine cancer? Shakeya Allen – Uterine Cancer Awareness Network Endometrial cancer is cancer contained inside the body of the uterus. Most people…

Douglas LowellMay 19, 2020

Patients

I was put on ABVD . . . I called it the “smart bomb” for killing Hodgkin’s

Conversations I'm here with my old friend, Greg Flanagan Flanagan. Hoss, thanks for talking to Conversations today. You recently battled Hodgkins Lymphoma . . . there are 40 to 50 leukemias and lymphomas. What is Hodgkins Lymphoma (HL) and how does it differ from Non Hodgkins Lymphoma (NHL)? Greg…

Douglas LowellMay 15, 2020

Advocates Patients

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

Conversations: Krystal, hi. Thanks so much for talking to conversations today. First, let me ask, what is endometriosis? Many people have heard of it but don't know it especially men! Krystal Beasley: Endometriosis is a condition where foreign tissue grows that mimics uterine tissues on the reproductive organs and close…

Douglas LowellFebruary 7, 2020

Patients

Cancer does not have the final say, God does!!!

Conversations: Robin, thanks so much for speaking to Conversations today. I want to start by asking you . . . what is bile duct cancer also called cholangiocarcinoma . . . ? As many people, don't know much about this type of cancer . . . Robin Garrett: Bile duct…

Douglas LowellJanuary 15, 2020

Advocates

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

Conversations: Melissa, thanks so much for talking to CONVERSATIONS today. I know you have such a powerful story. In fact, one of the reasons I started CONVERSATIONS was because of people like you who I’ve met over the years. I want to start by asking you what is Huntington’s Disease?…

Douglas LowellDecember 4, 2019

Patients

My doctor looked across the room at me and said, “You have quite a mess here . . .”

Conversations: Lynn, thanks so much for talking to CONVERSATIONS today. Let's talk GIST. What is GIST? As most people haven't heard of it and if they have, they probably know little about it. Lynn Whelan: GIST is a very rare cancer....a type of sarcoma called a Gastrointestinal stromal tumor. It…

Douglas LowellOctober 9, 2019

Patients

I definitely fell into a rabbit hole of reading various journals and articles

Conversations: Linda, thanks so much for speaking with you CONVERSATIONS today. Tell us about CTTP. What does that stand for? What type of disease it? Linda Bonilla: Thank you for having me. CTTP stands for Congenital Thrombotic Thrombocytopenic Purpura. It's a form of anemia in which the body does not…

Douglas LowellAugust 23, 2019

Researchers

A great respondent is articulate, engaged, thinks about responses and doesn’t just give one word answers

Conversations: Rachel Roscow, hi. Thanks for talking to CONVERSATIONS today. Take us to the beginning. How you got involved in research? And how you developed a subspecialty in health care? Rachel Roscow of Roscow Market Research:Hi Doug. I actually fell into marketing research, not by choice. But it was lucky,…

Douglas LowellJuly 11, 2019

Patients

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today. Tell us about Glanzmann Thrombasthenia (GT))? What type of disease is this? How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in normal, but the platelets don't function properly,…

Douglas LowellJune 26, 2019

I am using the essential oils in combination with the medicine

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Amyloidosis has been called “the great imposter” because many doctors mistake its symptoms for other diseases

My goal for UCAN is to become the Susan G Komen for uterine cancer

Latest Interviews

I am using the essential oils in combination with the medicine

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Amyloidosis has been called “the great imposter” because many doctors mistake its symptoms for other diseases

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

Listening to the Bones

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

Cancer does not have the final say, God does!!!

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Angel Nephrologist put together a family history and suggested Alport syndrome

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

I definitely fell into a rabbit hole of reading various journals and articles

We lost our health insurance after the campaign was dissolved and to this day I have not been able to acquire health insurance.

My goal for UCAN is to become the Susan G Komen for uterine cancer

I was put on ABVD . . . I called it the “smart bomb” for killing Hodgkin’s

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

Cancer does not have the final say, God does!!!

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

My doctor looked across the room at me and said, “You have quite a mess here . . .”

I definitely fell into a rabbit hole of reading various journals and articles

A great respondent is articulate, engaged, thinks about responses and doesn’t just give one word answers

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Latest Interviews

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