Patients

I am using the essential oils in combination with the medicine

Conversations: Elisa, thanks for talking to Conversations today. You have a very interesting and diverse story of conditions and diseases. Can you lead us through some summary of what you've been battling over the years?   Elisa Denaburg: Yes, the main issue was my thyroid. I had a misdiagnosis for…
Researchers

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Conversations: I am here today to talk to Doug Lowell, the president of Find A Cure Panel about Find A Cure Panel. So, yes, I’m interviewing myself! I’m doing this because so many people ask me about Find A Cure Panel and I wanted to create some reference points for…
Patients

Amyloidosis has been called “the great imposter” because many doctors mistake its symptoms for other diseases

Conversations: Eric, thanks for talking to Conversations today. Let me ask you: What is amyloidosis? What are the different types of it? And which one do you have?   Eric Eckerstrom: Amyloid is a starchy sticky substance made by misfolded proteins of various types . The types are called out…
Advocates

My goal for UCAN is to become the Susan G Komen for uterine cancer

Conversations: Shakeya, thanks for talking to Conversations today. Before we talk about the exciting things UCAN is doing. Let me first ask you, what is endometrial cancer/ uterine cancer?   Shakeya Allen – Uterine Cancer Awareness Network Endometrial cancer is cancer contained inside the body of the uterus. Most people…
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Latest Interviews

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Patients

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today.  Tell us about Glanzmann Thrombasthenia (GT))?  What type of disease is this?  How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in normal, but the platelets don't function properly,…
Douglas Lowell
June 26, 2019