Advocates

The father has asked if they must return to Pakistan if my husband and I would adopt their child with HoFH so that he can live

Douglas Lowell, Find A Cure Panel. Today, I welcome Cynthia Villwock, HoFH caregiver and advocate.   Cynthia Villwock, HoFH caregiver and advocate Thank you for asking me   Douglas Lowell, Find A Cure Panel. Cynthia, I want to start by defining Homozygous Familial Hypercholesterolemia (HoFH) hereafter HoFH.   What is this…
Practioners

I grew a heart for my patients with dementia who I felt were underserved and misunderstood

Douglas Lowell, Find a Cure Panel Welcoming Adria Thompson today to Conversations   Adria, tell us how you became an advocate for Alzheimer’s?   Adria Thompson, Be Light Care Consulting I have been a speech language pathologist for 9 years working in long term care and as I was providing…
Advocates

I would want to see anyone with a serious mental illness live independently if they truly can, safely and successfully

Douglas Lowell, Find A Cure Panel I'm here with Kartar Diamond, a schizophrenia advocate.  Thanks for joining Conversations, Kartar.   Kartar Diamond, schizophrenia advocate and author Thank you.   Douglas Lowell, Find A Cure Panel I want to start by defining Schizophrenia. Everyone has heard of it but I think…
Advocates

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

Conversations Talking with Jennifer Weaver, today.  Jennifer works with Cholangiocarcinoma Foundation (CCF).  Before talking about the great work you're doing with CCF.  Let's first talk about cholangiocarcinoma known as CCA or bile duct cancer (BDC).  Tell Conversations, what is CCA?   Jennifer Weaver, Cholangiocarcinoma Foundation Cholangiocarcinoma pronounced (koh-LAN-jee-oh-KAR-sih-NOH-muh) is a…
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Latest Interviews

Advocates

I decided to be the change that I wanted to see

Conversations: Mapillar, thanks for speaking to CONVERSATIONS today. Now, you're both a caregiver and advocate for sickle cell disease (SCD)?   Mapillar Dahn / MTS Sickle Cell Foundation: You're so very welcome. It's my pleasure. I am the mother of three beautiful daughters who all suffer from sickle cell disease.…
Douglas Lowell
May 17, 2019
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Trending Interviews

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

July 11, 2020

Cancer does not have the final say, God does!!!

January 15, 2020

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

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I am using the essential oils in combination with the medicine

July 30, 2020

Listening to the Bones

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Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

December 4, 2019

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

June 26, 2019

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

June 3, 2019

Angel Nephrologist put together a family history and suggested Alport syndrome

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Leukemia Fighter! (CML); I Am Dancing and Traveling My Way Through

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Advocates

We fight on each day in their honor

Conversations: Ashley, hi. Thanks for speaking with CONVERSATIONS today. Take me back to the beginning. How did you get involved with Wisconsin Ovarian Cancer Alliance which is known as WOCA?   Ashley Wagner of WOCA: Thank you for having me! I got involved with WOCA roughly 6 years ago. A…
Douglas Lowell
May 17, 2019
Patients

The energy you present introduces you

Conversations: Ivy, hi. Thanks for talking to CONVERSATIONS today. Tell us what ITP is as likely few people have heard of it or know much about it.   Ivy Dash: ITP stands for Immune Thrombocytopenic Purpura. In essence, it's that your body is destroying your platelets. Platelets are used for…
Douglas Lowell
May 15, 2019
Patients

Listening to the Bones

Conversations: Marla, hi. Thanks so much for speaking with CONVERSATIONS today.   Marla Faith: My pleasure.   Conversations: Most people don't know Myelofibrosis . . . MF . . . and indeed many people have never heard of it. What is MF?   Marla Faith: It is a blood cancer…
Douglas Lowell
May 13, 2019
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