Advocates

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

Conversations Talking with Jennifer Weaver, today.  Jennifer works with Cholangiocarcinoma Foundation (CCF).  Before talking about the great work you're doing with CCF.  Let's first talk about cholangiocarcinoma known as CCA or bile duct cancer (BDC).  Tell Conversations, what is CCA?   Jennifer Weaver, Cholangiocarcinoma Foundation Cholangiocarcinoma pronounced (koh-LAN-jee-oh-KAR-sih-NOH-muh) is a…
Patients

I need these scientists to work harder.  I have to work hard to fight this disease.

CONVERSATIONS Sue, hi.  Thanks so much for joining Conversations today.  So grateful for your time.   SUE FUTERAL Thank you.  My pleasure.   CONVERSATIONS Sue, let me first ask you about ALL.  Most people know that leukemia is a blood cancer but may not realize there are 30 to 40…
Advocates

We hope our doors close one day due to finding a cure

Douglas Lowell, Find A Cure Panel I'm excited to be speaking today with Roberta Smith, president of Alagille Syndrome Alliance (ALGSA). Roberta, welcome.   Roberta Smith, president of Alagille Syndrome Alliance (ALGSA) Thank you so much. I'm always eager to spread awareness about Alagille Syndrome and this is a great…
Advocates

It’s like my sharing became a portal and opening for other people to share their stories

Douglas Lowell – Find a Cure Panel - Conversations I am here with eczema advocate, Ashley Lora. Ashley, thanks for joining Conversations today.   Ashley Lora Thanks for having me, Doug!   Douglas Lowell – Find a Cure Panel - Conversations Many people know of eczema. It's very common. But…
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Latest Interviews

Advocates

We fight on each day in their honor

Conversations: Ashley, hi. Thanks for speaking with CONVERSATIONS today. Take me back to the beginning. How did you get involved with Wisconsin Ovarian Cancer Alliance which is known as WOCA?   Ashley Wagner of WOCA: Thank you for having me! I got involved with WOCA roughly 6 years ago. A…
Douglas Lowell
May 17, 2019
Patients

The energy you present introduces you

Conversations: Ivy, hi. Thanks for talking to CONVERSATIONS today. Tell us what ITP is as likely few people have heard of it or know much about it.   Ivy Dash: ITP stands for Immune Thrombocytopenic Purpura. In essence, it's that your body is destroying your platelets. Platelets are used for…
Douglas Lowell
May 15, 2019
Patients

Listening to the Bones

Conversations: Marla, hi. Thanks so much for speaking with CONVERSATIONS today.   Marla Faith: My pleasure.   Conversations: Most people don't know Myelofibrosis . . . MF . . . and indeed many people have never heard of it. What is MF?   Marla Faith: It is a blood cancer…
Douglas Lowell
May 13, 2019
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