FACP Magazine

Advocates Patients

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

Conversations: Krystal, hi. Thanks so much for talking to conversations today. First, let me ask, what is endometriosis? Many people have heard of it but don't know it especially men! Krystal Beasley: Endometriosis is a condition where foreign tissue grows that mimics uterine tissues on the reproductive organs and close…

Douglas LowellFebruary 7, 2020

Patients

Cancer does not have the final say, God does!!!

Conversations: Robin, thanks so much for speaking to Conversations today. I want to start by asking you . . . what is bile duct cancer also called cholangiocarcinoma . . . ? As many people, don't know much about this type of cancer . . . Robin Garrett: Bile duct…

Douglas LowellJanuary 15, 2020

Advocates

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

Conversations: Melissa, thanks so much for talking to CONVERSATIONS today. I know you have such a powerful story. In fact, one of the reasons I started CONVERSATIONS was because of people like you who I’ve met over the years. I want to start by asking you what is Huntington’s Disease?…

Douglas LowellDecember 4, 2019

Patients

My doctor looked across the room at me and said, “You have quite a mess here . . .”

Conversations: Lynn, thanks so much for talking to CONVERSATIONS today. Let's talk GIST. What is GIST? As most people haven't heard of it and if they have, they probably know little about it. Lynn Whelan: GIST is a very rare cancer....a type of sarcoma called a Gastrointestinal stromal tumor. It…

Douglas LowellOctober 9, 2019

Patients

I definitely fell into a rabbit hole of reading various journals and articles

Conversations: Linda, thanks so much for speaking with you CONVERSATIONS today. Tell us about CTTP. What does that stand for? What type of disease it? Linda Bonilla: Thank you for having me. CTTP stands for Congenital Thrombotic Thrombocytopenic Purpura. It's a form of anemia in which the body does not…

Douglas LowellAugust 23, 2019

Researchers

A great respondent is articulate, engaged, thinks about responses and doesn’t just give one word answers

Conversations: Rachel Roscow, hi. Thanks for talking to CONVERSATIONS today. Take us to the beginning. How you got involved in research? And how you developed a subspecialty in health care? Rachel Roscow of Roscow Market Research:Hi Doug. I actually fell into marketing research, not by choice. But it was lucky,…

Douglas LowellJuly 11, 2019

Patients

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today. Tell us about Glanzmann Thrombasthenia (GT))? What type of disease is this? How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in normal, but the platelets don't function properly,…

Douglas LowellJune 26, 2019

Practioners

Many patients are often prematurely discharged from inpatient units and inevitably destabilize or are released from jails without proper treatment.

Conversations: Lynn, hi. Thanks for speaking with CONVERSATIONS today. Tell us about your practice? What you specialize in? What your niche is? Lynn Nanos: Hi, Conversations! Thank you for inviting me to interview with you! I’m a mobile emergency psychiatric social worker in Massachusetts and I've been doing this for…

Douglas LowellJune 14, 2019

Patients

We lost our health insurance after the campaign was dissolved and to this day I have not been able to acquire health insurance.

Conversations: Misty, thanks for talking to CONVERSATIONS today. Let us go back to the beginning. Take us back to BEFORE your diagnosis. How you were feeling? What your doctor said? Your reaction to getting hit with cancer in your 30’s? Misty: It was May 2018. I was about to turn…

Douglas LowellJune 5, 2019

Advocates Patients

Despite all of the treatments I’ve taken to fight my disease, teaching has been the most therapeutic.

Conversations: Stephen, welcome to CONVERSATIONS. I know you are a very young man with lung cancer. Much too young. Take us back to before your diagnosis. How were you feeling? Stephen Huff, the Huff Project: Hello Doug, I'm feeling very good currently. Prior to my diagnosis, I was just 28yrs…

Douglas LowellJune 4, 2019

Patients

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

Conversations: Jocelyn, it's so exciting to speak with you today. You're such an inspiring person. I want to start by asking you what cerebral palsy (CP) is because many people have heard of it but not know much about it. Jocelyn Tichenor: When I was born, I didn't get…

Douglas LowellJune 3, 2019

Researchers

People want to know they are being heard. And we give them an outlet for that.

Conversations: Linda thanks for talking to CONVERSATIONS today. You've been in health care research for over 10 years. Take me back to the beginning. How did you get started in health care research? What brought you into this industry? Linda Sales, Sundial: Hi, Doug. Well, it was by chance actually…

Douglas LowellJune 3, 2019

The father has asked if they must return to Pakistan if my husband and I would adopt their child with HoFH so that he can live

I grew a heart for my patients with dementia who I felt were underserved and misunderstood

I would want to see anyone with a serious mental illness live independently if they truly can, safely and successfully

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

Latest Interviews

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

Cancer does not have the final say, God does!!!

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Cancer does not have the final say, God does!!!

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

I am using the essential oils in combination with the medicine

Listening to the Bones

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

Angel Nephrologist put together a family history and suggested Alport syndrome

I need these scientists to work harder. I have to work hard to fight this disease.

My doctor looked across the room at me and said, “You have quite a mess here . . .”

I definitely fell into a rabbit hole of reading various journals and articles

A great respondent is articulate, engaged, thinks about responses and doesn’t just give one word answers

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Many patients are often prematurely discharged from inpatient units and inevitably destabilize or are released from jails without proper treatment.

We lost our health insurance after the campaign was dissolved and to this day I have not been able to acquire health insurance.

Despite all of the treatments I’ve taken to fight my disease, teaching has been the most therapeutic.

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

People want to know they are being heard. And we give them an outlet for that.

Latest Interviews

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