FACP Magazine

Patients

My doctor looked across the room at me and said, “You have quite a mess here . . .”

Conversations: Lynn, thanks so much for talking to CONVERSATIONS today. Let's talk GIST. What is GIST? As most people haven't heard of it and if they have, they probably know little about it. Lynn Whelan: GIST is a very rare cancer....a type of sarcoma called a Gastrointestinal stromal tumor. It…

Douglas LowellOctober 9, 2019

Patients

I definitely fell into a rabbit hole of reading various journals and articles

Conversations: Linda, thanks so much for speaking with you CONVERSATIONS today. Tell us about CTTP. What does that stand for? What type of disease it? Linda Bonilla: Thank you for having me. CTTP stands for Congenital Thrombotic Thrombocytopenic Purpura. It's a form of anemia in which the body does not…

Douglas LowellAugust 23, 2019

Researchers

A great respondent is articulate, engaged, thinks about responses and doesn’t just give one word answers

Conversations: Rachel Roscow, hi. Thanks for talking to CONVERSATIONS today. Take us to the beginning. How you got involved in research? And how you developed a subspecialty in health care? Rachel Roscow of Roscow Market Research:Hi Doug. I actually fell into marketing research, not by choice. But it was lucky,…

Douglas LowellJuly 11, 2019

Patients

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today. Tell us about Glanzmann Thrombasthenia (GT))? What type of disease is this? How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in normal, but the platelets don't function properly,…

Douglas LowellJune 26, 2019

Practioners

Many patients are often prematurely discharged from inpatient units and inevitably destabilize or are released from jails without proper treatment.

Conversations: Lynn, hi. Thanks for speaking with CONVERSATIONS today. Tell us about your practice? What you specialize in? What your niche is? Lynn Nanos: Hi, Conversations! Thank you for inviting me to interview with you! I’m a mobile emergency psychiatric social worker in Massachusetts and I've been doing this for…

Douglas LowellJune 14, 2019

Patients

We lost our health insurance after the campaign was dissolved and to this day I have not been able to acquire health insurance.

Conversations: Misty, thanks for talking to CONVERSATIONS today. Let us go back to the beginning. Take us back to BEFORE your diagnosis. How you were feeling? What your doctor said? Your reaction to getting hit with cancer in your 30’s? Misty: It was May 2018. I was about to turn…

Douglas LowellJune 5, 2019

Advocates Patients

Despite all of the treatments I’ve taken to fight my disease, teaching has been the most therapeutic.

Conversations: Stephen, welcome to CONVERSATIONS. I know you are a very young man with lung cancer. Much too young. Take us back to before your diagnosis. How were you feeling? Stephen Huff, the Huff Project: Hello Doug, I'm feeling very good currently. Prior to my diagnosis, I was just 28yrs…

Douglas LowellJune 4, 2019

Patients

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

Conversations: Jocelyn, it's so exciting to speak with you today. You're such an inspiring person. I want to start by asking you what cerebral palsy (CP) is because many people have heard of it but not know much about it. Jocelyn Tichenor: When I was born, I didn't get…

Douglas LowellJune 3, 2019

Researchers

People want to know they are being heard. And we give them an outlet for that.

Conversations: Linda thanks for talking to CONVERSATIONS today. You've been in health care research for over 10 years. Take me back to the beginning. How did you get started in health care research? What brought you into this industry? Linda Sales, Sundial: Hi, Doug. Well, it was by chance actually…

Douglas LowellJune 3, 2019

Advocates Patients

I know over 5000 people who had lost their battle with AIDS

Conversations: Dab, thanks for talking to CONVERSATIONS today. You've been active in HIV advocacy for many years. Before that, I want to talk to you about the beginning because many people don't know about the HIV epidemic. Not those under 50. You were diagnosed in what year? Tell us how…

Douglas LowellMay 21, 2019

Advocates

Angel Nephrologist put together a family history and suggested Alport syndrome

Conversations: Joy, thanks for talking to CONVERSATIONS today. Tells us about Alport Syndrome. Few people know what that is, never mind have heard of it. Joy Toal – Alport Syndrome Foundation: Thank you for including me, Doug. Alport syndrome is a rare genetically inherited disease that affects the ears,…

Douglas LowellMay 21, 2019

Advocates

I decided to be the change that I wanted to see

Conversations: Mapillar, thanks for speaking to CONVERSATIONS today. Now, you're both a caregiver and advocate for sickle cell disease (SCD)? Mapillar Dahn / MTS Sickle Cell Foundation: You're so very welcome. It's my pleasure. I am the mother of three beautiful daughters who all suffer from sickle cell disease.…

Douglas LowellMay 17, 2019

Cholangiocarcinoma is often diagnosed at advanced stages when treatment is only minimally effective, emphasizing the imminent need for novel therapies

I need these scientists to work harder. I have to work hard to fight this disease.

We hope our doors close one day due to finding a cure

It’s like my sharing became a portal and opening for other people to share their stories

Latest Interviews

My doctor looked across the room at me and said, “You have quite a mess here . . .”

I definitely fell into a rabbit hole of reading various journals and articles

A great respondent is articulate, engaged, thinks about responses and doesn’t just give one word answers

A core philosophy for Find A Cure Panel is it’s “all good all the time.”

Cancer does not have the final say, God does!!!

Endometriosis is thought to be a reproductive disease . . . but in reality, it affects the entire body

Listening to the Bones

Huntington’s Disease destroys everyone and everything and it doesn’t stop . . .

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

Angel Nephrologist put together a family history and suggested Alport syndrome

I am using the essential oils in combination with the medicine

Leukemia Fighter! (CML); I Am Dancing and Traveling My Way Through

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

Many patients are often prematurely discharged from inpatient units and inevitably destabilize or are released from jails without proper treatment.

We lost our health insurance after the campaign was dissolved and to this day I have not been able to acquire health insurance.

Despite all of the treatments I’ve taken to fight my disease, teaching has been the most therapeutic.

She helped me get a job with the FBI. I have been with the FBI for almost 15 years.

People want to know they are being heard. And we give them an outlet for that.

I know over 5000 people who had lost their battle with AIDS

Angel Nephrologist put together a family history and suggested Alport syndrome

I decided to be the change that I wanted to see

Latest Interviews

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